PIA Executive Committee:
Chair: Sietske A.M. Sikkes, PhD
Dr. Sietske Sikkes is an assistant professor at the Alzheimer Center Amsterdam and the Department of Epidemiology and Biostatistics of the Amsterdam University Medical Centers. With a background in clinical neuropsychology and epidemiology, her research focuses on the psychometrics of everyday functioning and cognition, and the development of new measurement techniques for the detection of clinical meaningful changes in the early stages of AD. Dr. Sikkes performed a post-doc fellowship at the Salpetriere Hopital in Paris, and just finished a year of visiting professorship at the department of Neurology at Massachusetts General Hospital and Harvard Medical School in Boston. Within the ISTAART professional interest areas, she currently serves on the ISTAART advisory board and also as the chair elect of the subjective cognitive decline PIA.
Vice Chair: Benjamin M. Hampstead, PhD, ABPP/CN
Dr. Hampstead is a board-certified Clinical Neuropsychologist who earned his PhD in Clinical Psychology (Neuropsychology emphasis) from Drexel University. He is an Associate Professor of Psychiatry at the University of Michigan, Staff Neuropsychologist in the VA Ann Arbor Healthcare System, and Clinical Core Leader of the NIA funded Michigan Alzheimer’s Disease Research Center. Dr. Hampstead’s research focuses on non-pharmacologic approaches to maximize cognitive functioning in older adults across the dementia spectrum. Specifically, he uses cognitively oriented treatments and non-invasive brain stimulation to enhance cognition, typically within the context of a randomized controlled trial format. Dr. Hampstead integrates these techniques with functional and structural neuroimaging in order to predict treatment response, identify the neuroplastic changes following treatment, and plan/develop new interventions. Ongoing work integrates amyloid and tau positron emission tomography (PET) in order to better characterize participant characteristics associated with treatment response. He has maintained continuous federal funding for his work since earning his doctorate (13+ years), with most support from the Department of Veterans Affairs and National Institute on Aging.
Programs Chair: Patricia C. Heyn, PhD
Dr. Patricia C. Heyn has been involved in applied clinical aging research for over 20 years. Her investigations related to (1) promoting healthy lifestyle behavior; (2) preventing or delaying the onset of Alzheimer’s disease with exercise and/or cognitive training; (3) evaluating protective/risk factors associated to cognitive decline; (4) early detection of cognitive decline including mobility impairments; and (5) evaluating emerging technologies usability for individuals with cognitive impairments has been funded by the National Institutes of Health, U.S. Department of Health and Human Services Administration for Community Living, Coleman Institute, and the J.T. Tai Foundation. She has distinctive knowledge in evidence-based methodologies and clinical guideline practices. Her meta-analysis study on the effects of exercise training for individuals with dementia is recognized as one of the most cited articles from the Archives of Physical Medicine and Rehabilitation and is highly scored in Altmetric. She is well-known for developing effective mentored evidence-based clinical scientist training programs (i.e. PMID: 26472583, PMID: 24569702 and PMID: 30605502, PMID: 29568518 ) and she received several awards and honorable mentions for her mentoring.
Communications Chair: Terrianne Reynolds, MPH
Terrianne Reynolds, MPH completed her bachelor of science in exercise physiology/cardiac rehabilitation at Winona State University and attended the University of Wisconsin School of Public Health. After completing an administrative fellowship at Gundersen Lutheran Health System in LaCrosse, Wisconsin, she received further experience in medical school administration at the Chicago Medical School at Rosalind Franklin University of Medicine and Science, where she served as Director of Operations, Assistant Dean of Planning and Clinical Instructor of Medicine for 10 years; five years as Course Director for Clinical Epidemiology. She holds certificates in Healthcare Management, Strategic Planning and Physician Leadership.
Ms. Reynolds career interest is in the design and implementation of continuing medical education and health system quality improvement strategies to enhance early diagnosis, care and support for Alzheimer’s patients, families and caregivers. She has specific interest in clinical trials designed to implement exercise, nutrition and lifestyle behaviors to delay the onset of mild cognitive impairment.
She currently serves as the Director of Medical and Research Activities for the Alzheimer’s Association Illinois Chapter. She is on the Association Health Systems workgroup, on volunteer faculty as Clinical Instructor of Neurology and Rehabilitation at the University of Illinois at Chicago, and serves on multiple health system dementia workgroups and committees. She leads the chapter’s Medical and Scientific Advisory Committee, and oversees physician outreach, education and research engagement, especially in communities under-represented in aging research.
General Member: Matthew Janicki, PhD
Matthew P. Janicki, Ph.D. is the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, as well as a research associate professor in the Department of Disability and Human Development at the University of Illinois at Chicago. Previously, he was the director for aging and special populations for the New York State Office for People with Developmental Disabilities, and spent a year as a Joseph P. Kennedy, Jr. Foundation's Public Policy Leadership Fellow at the National Institute on Aging and the United States Senate. He is a member of the federal Advisory Council on Alzheimer’s Research, Care, and Services [under the US National Alzheimer’s Project Act]. Currently, he is leading a longitudinal study of specialized group homes designed for dementia-related care of adults with intellectual disability, including Down syndrome. He was the principal investigator of several federally-funded studies that examined how community agencies provide community supports to adults with intellectual disabilities affected by Alzheimer’s disease and how families are aided by community agencies in supporting adults with Down syndrome affected by Alzheimer’s disease. He was also the project director of a NIH-funded effort that provided the World Health Organization with a series of background reports on promoting longevity among adults with intellectual disabilities throughout the world. He was the founding editor of the Journal of Policy and Practice in Intellectual Disabilities and is also the editor of numerous books and author of articles on aging, dementia, public policy, and rehabilitation concerning adults with intellectual and developmental disabilities (including Dementia, Aging, and Intellectual Disabilities: A Handbook).
General Member: R.J. (Roos) Jutten, PhD
Roos Jutten is a postdoctoral researcher with a background in clinical neuropsychology, and currently works as Research Felllow at Massachusetts General Hospital /Harvard Medical School in Boston. She has a special interest in the measurement of clinical progression in Alzheimer’s disease and related dementias, and the development and validation of cognitve outcome measures. Most of her PhD work relates to the ‘Capturing Changes in Cognition’ (Catch-Cog) project, which is an international, longitudinal cohort study on the measurement of changes in cognition and everyday functioning in early dementia stages. In 2017, Roos obtained a fellowship grant from the Dutch Alzheimer’s Association to perform an off-site research fellowship in the United States of America. During this fellowship, she collaborated with researchers from the University of Rhode Island (Providence, RI) and Massachusetts General Hospital, Harvard Medical School (Boston, MA). In 2017, she joined the Non-pharmacological Interventions PIA Executive Committee as a Student Member, and she is currently has the role of General Member. Next to this, Roos is also a board member of the Dutch Neuropsychological Association. The main aim of Roos' postdoctoral research is to improve outcome measures of cognition for use in early stages of Alzheimer's disease, by refining existing cognitive measures using modern psychometric techniques as well as the development and careful validation of novel test paradigms such as high-frequent computerized cognitive assessments.
Student Representative: Jaisalmer de Frutos Lucas, PhD Candidate
I graduated first in class in Psychology in 2014 from Universidad Autonoma de Madrid (Spain), having spent one year at Tufts university (USA) on exchange on a full scholarship. I hold a master’s degree in Neuroscience and a postgraduate diploma in Medical Genetics. From that early stage of my career, I was also determined to play an active role at university, so I was elected class representative every year, I was a student representative in the Biological and Health Psychology department research committee for a two year period and I co-founded a student association. In recognition of my academic achievements, I was honored to participate in the Young Iberoamerican Leaders program organized by Fundación Carolina, and during one term I became part of the management board and the head of the projects committee of its alumni association, the Network of Young Iberoamerican Leaders. More recently, I have been the communications representative of the Laboratory of Cognitive and Computational Neuroscience.
I am currently enrolled in a joint PhD program between Edith Cowan University (Australia) and Universidad Autonoma de Madrid (Spain), which means I develop my research studies between two continents, three if we count my three month visit to a lab at York University (Canada). I am interested in understanding the interactive relationships between lifestyle and genetic risk for Alzheimer’s disease, focusing mainly on physical activity. I have contributed over 30 communications to different conferences around the globe, including the AAIC. My first chance to take part in this event took place when I joined the ISTAART student volunteer team in 2018.
Postdoc: Christine Dileone, PhD, MSN, RN
Christine Dileone PhD, MSN, RN is an Assistant Clinical Professor at the University of Connecticut School of Nursing. She utilizes the resources of the Alzheimer's Association in her teaching, specifically on communication techniques with dementia patients to maintain dignity and improve care. Christine serves her faith community as a Parish nurse, by assisting pastors in the care of the mind, body and soul of the congregation members. She coordinates a monthly Alzheimer's support group and is actively involved in yearly walks to end Alzheimer’s, a committee member of both the Advocacy & Policy and Education committees at the Association, as well as a Women's Champions in the Fight Against Alzheimer's Women's Campaign. Christine cared for her mom with Alzheimer's both in her home and as a long distance caregiver for almost twelve years before her passing in April 2018.
Immediate Past Chair: Alex Bahar-Fuchs, PhD
I am a researcher and clinician specializing in the field of cognitive ageing. My early work furthered our understanding of olfactory cognitive processes and their relevance to the early detection of Alzheimer’s disease. More recently, my research interests have broadened and include the development of non-pharmacological interventions aimed at primary and secondary prevention of cognitive decline and dementia. I obtained my BA in Psychology, Sociology and Anthropology from Ben-Gurion University in Israel, and completed a Postgraduate Diploma in Psychology here at the University of Melbourne. I then completed a PhD in clinical neuropsychology at Monash University along with all requirements of an MA in clinical neuropsychology. I completed postdoctoral training at the Centre for Research on Ageing, Health, and Wellbeing at the Australian National University. Between July 2014 and December 2016, I was based at the Joseph Sagol Centre for Neuroscience at Sheba Medical Centre, Israel, as part of an NHMRC Overseas-Based Clinical Early Career Fellowship. I am a founding member and Chair of CIDER - an International Working Group, focused on the advancement of methodological quality of cognition-focused intervention trials for people at risk of dementia. I am also the Chair (2016-2018) of the Non-Pharmacological Interventions Professional Interest Area (PIA) of the International Society for the Advancement of Alzheimer's Research and Treatment (ISTAART).